Are you a parent or caregiver with questions about cerebral palsy (CP) and rehabilitation for your child?
NeuroDevNet Associate Trainee Dr. Pranay Jindal is currently investigating parents perspectives about rehabilitating their child with CP. He is also exploring what kind of concerns and questions parents of children with cerebral palsy undergoing rehabilitation have in order to create resource modules in the form of online videos as part of his research as a PhD Student at CanChild. These videos will aim to provide families with a clearer and broader understanding of CP and its rehabilitation.
Oftentimes, families can be bogged down by medical jargon, and have difficulty relating what the diagnosis means in terms of rehabilitation for their child. The questions and insights he receives from the interviews will be an important part to the development of the video resources.
This study will also incorporate a unique cross-cultural perspective. Dr. Jindal will be interviewing parents and caregivers from India and North America. Parents from both cultures have different ways of approaching and understanding CP and these interviews will be an essential to creating a culturally inclusive source.
“Canada and India differ in the level of education, awareness, health literacy and use of Internet for information seeking,” said Dr. Jindal. “There is also a difference in the available health care services and how are they provided to patients. Economic and socio-cultural differences also exist which influences the technology used in rehabilitation. These differences will influence on how parents perceive the education, and incorporate it in their child's rehabilitation.”
Last December, he collaborated with Manipal University in India and interviewed 11 parents. Currently, he is hoping to gain insight into the types of questions North American families have about CP. One of the main differences he has found so far is that India relies solely on physiotherapy as rehabilitation, while North Americans include more types of therapies and professionals on a child’s rehabilitation team.
If you are a parent or caregiver of children with CP aged 2-10 years, live in North America, and have access to internet connection, please consider participating in an interview. The interviews will take approximately 45 to 60 minutes long, and can be completed via Skype/Google or in person in the Hamilton, Ontario area. The study has 3 phases, and Dr. Jindal requests parents to participate in all the phases. Upon completion of all 3 phases, participants will receive $50 for their participation. The deadline is June 25, 2015.
This study has been approved by McMaster University and supported by the American Academy of Cerebral Palsy and Developmental Medicine.
Contact: Dr. Pranay Jindal at .
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Research Associate - Health Policy, School of Public Policy at the University of Calgary