Jacob's Story a play about the challenges of living with FASD premiers live & online Nov. 7
Rendered as a play performed by local actors, "Jacob's Story" follows the life of Jacob, a little boy with Fetal Alcohol Spectrum Disorder (FASD). Although Jacob is a character in the play, he represents many because the issues he faces are the issues that confront every child, adolescent, and adult living with FASD.
The goal of Jacob's Story is to take the audience on the emotional "roller coaster" ride that kids and their families face. It is intended to help educators understand the whole picture and the extent of the heartache FASD creates in the lives of the children they are intended to help. It also has at its centre the hope to bring the "data and research" to life and give the numbers a face.
In the prologue, Jacob introduces himself and closes with the statement, "I'm broken on the inside...in my brain...but people can't see that part so they usually don't like me. And don't want to help." This is the central theme of the piece...how important it is for all those in the life of someone with FASD to understand this invisible disability.
Ongwanada, a non-profit organisation that supports individuals with developmental disabilities, is supporting the webcast together with the Kingston FASD Action Networkin hopes of reaching a larger audience and increasing community awareness about FASD. "The theatrical performance of Jacob's Story is an unique and moving way to increase understanding from the perspective of an individual with FASD," says Rachel Brace, who works at Ongwananda.
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Research Associate - Health Policy, School of Public Policy at the University of Calgary